FORUM: "Demanding our rights:Protect our skin, Preserve our lives.'' International Albinism Awareness Day 2025. The theme highlights the urgent need to prevent skin cancer in persons with albinism through awareness, screenings, and sunscreen access.The risk of skin cancer is extremely high for persons with albinism, and the lack of access to sunscreen, protective gear, as well as skin cancer screening and treatment can lead to foreseeable, yet preventable deaths. Skin cancer is the primary cause of death for persons with albinism in the Southern African region, rendering sunscreen an essential medicine, not a cosmetic product. The majority of national action plans on albinism adopted by governments include measures to ensure access to sunscreen, protective clothing and regular dermatological check-ups and skin cancer treatments. Several countries have initiatives providing free or subsidized sunscreen and sun protective clothing, access to dermatological services and skin cancer screening, detection and treatment and awareness campaigns to educate persons with albinism and their families about the importance of sun protection. Studies published on the impact of such interventions have shown that these interventions, where implemented, have significantly improved the health outcomes of persons with albinism. Follow the conversations with the hashtags: #iaad2025, #sunscreenisadrug, #albinism.
EVENTS: On June 13th, International Albinism Awareness Day 2025; Participants will discuss how to make sunscreen accessible for all with albinism. The year 2025 marks the tenth anniversary of the establishment of the mandate on the enjoyment of human rights by persons with albinism. In commemoration of this milestone, in her report the current mandate holder, Muluka-Anne Miti-Drummond, provides an overview of progress made in the implementation of rights of persons with albinism worldwide over the last decade. The Independent Expert also outlines persisting challenges and makes recommendations for the continued advancement of the rights of persons with albinism. This #IAAD2025, we’ll share a special impact report. Stay tuned!
CAMPAIGN: 80% of deaf people around the world have difficulties with literacy and oral languages. Let's help them acquire the skills needed!
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