International Albinism Awareness Day 2022, June 13th.

FORUM: "UNITED IN MAKING OUR VOICE HEARD." International Albinism Awareness Day 2022.

United in Making our Voices Heard is the theme of International Abinism Awareness Day 2022. The observance is celebrated annually on June 13th to celebrate the human rights of persons with albinism worldwide. Albinism is a rare, non-contagious, genetically inherited difference present at birth. In almost all types of albinism, both parents must carry the gene for it to be passed on, even if they do not have albinism themselves. The condition is found in both sexes regardless of ethnicity and in all countries of the world. Albinism results in a lack of pigmentation (melanin) in the hair, skin and eyes, causing vulnerability to the sun and bright light. As a result, almost all people with albinism are visually impaired and are prone to developing skin cancer. There is no cure for the absence of melanin that is central to albinism. Follow the conversation with the hastags #UnitedInMakingOurVoiceHeard, #AlbinismDay, #13june

ACTIONS

The theme was chosen because including voices of persons with albinism is essential:

- to ensure equality and inclusion
- to celebrate how groups of persons with albinism and individuals increase the visibility of persons with albinism in all domains of life
- to encourage and celebrate unity among groups of persons with albinism.
- to amplify the voices and visibility of persons with albinism in all areas of life
- to highlight the work being done by albinism groups around the world.

CAMPAIGN 
Urging all nations and communities to protect and fulfil the human rights of all persons with albinism and provide necessary support and care

On International albinism Awareness Day, the UN Independent Expert on the rights of persons with albinism, Muluka Miti-Drummond, pays tribute to those living with the condition and to those fighting to dispel the harmful myths fueling the discrimination, stigmatization and violence against them.